Our Her ALS Story sister, Alyssa Jeswald Lee, passed away in November. Today is her Celebration of Life. Here is the HAS remembrance that will be read at her service.…

“Send card to Kyle” has been on my perpetual weekly to do list since September when he Tweeted this photo: I was beyond touched. A tattoo matching mine, 7 swallows…

Well, here we are: 7 years to the actual day when I was diagnosed with ALS (though we didn’t understand what doctor was saying at the time…). It seems like…

My mom asked the other day if I cared if people knew how old I was. I believe I said something like, “Hell no, I’m supposed to be dead by…

Today was supposed to begin our epic journey to Alaska with a stopover in Olympia, WA for Marathon #20. We would have spent the following week in Ketchikan and Prince…

via FB, from Alison Kelly   I hate writing these posts; another friend gone too soon. This one wasn’t from ALS, it was a fast-acting bacterial infection. That doesn’t make…

I’m overwhelmed with gratitude by the heartfelt notes I have received about my recent FB post. Hearing from so many people I know from different corners and eras in my…

(Journal entry written while flying from Hoedsprit to Cape Town on 9/4) “Don’t cry because it’s over, smile because it happened.”  …said the note on our bed this morning when…

I spent a lot of time on safari considering which animal in the bush I would most want to be. The obvious choice is a lion. You get to sleep…