By 2013, I had run a marathon and done 9 triathlons, including a 70.3-mile half Ironman.
In 8 months I went from the strongest I’d ever been to walking with a cane – and I was diagnosed with ALS in May 2014, at the age of 33.
So what do you do when you’re told that you’re going to die in the next 2-5 years? That there is no treatment and no cure.
And that before you die, you will lose the ability to walk, talk, move, eat, and breathe?
My husband and I had just bought a house. We were planning to start a family.
I realized is that if there was something I really wanted to do – I needed to do it now.
We bought a recumbent trike and I signed up for my “last” triathlon, which became the most extraordinary day of my life as more than a hundred people stayed to cheer us in.