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Today was supposed to begin our epic journey to Alaska with a stopover in Olympia, WA for Marathon #20. We would have spent the following week in Ketchikan and Prince of Wales Island, sightseeing and speaking to schools leading up to the POW Marathon, which would be Marathon #21 and…

via FB, from Alison Kelly   I hate writing these posts; another friend gone too soon. This one wasn’t from ALS, it was a fast-acting bacterial infection. That doesn’t make it hurt any more or less, but differently. Friendship with ALS comes with the expectation of loss. Chris Kochtitzy’s passing…

I’m overwhelmed with gratitude by the heartfelt notes I have received about my recent FB post. Hearing from so many people I know from different corners and eras in my life reminded my how truly blessed I have been to get to know each of you – many people that…

(Journal entry written while flying from Hoedsprit to Cape Town on 9/4) “Don’t cry because it’s over, smile because it happened.”  …said the note on our bed this morning when we came back from our last game drive this morning, the one in which we saw the highly endangered white…

I spent a lot of time on safari considering which animal in the bush I would most want to be. The obvious choice is a lion. You get to sleep 16-20 hours a day, the rest of the bush is terrified of you, and you basically get to eat whatever…

There are all of our other vacations…and then there’s this one. I’m currently watching about twenty impalas around the watering hole off our deck, and one baboon which is down from FIFTY about an hour ago. His family is still nearby though because I can hear occasional yelling somewhere through…

I am officially one of the lucky ones. Today is the fifth anniversary of my diagnosis with ALS. Everyone in the ALS community knows that dreaded “2-5 years life expectancy” phrase – it is shorthand for how brutal this disease is. How fast. How lethal. And still, it glosses over…