Race for Augie Nieto
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Thus far, I’ve taken 2017 off from dedicating races to people with ALS and writing race reports. It just became too much with all the other writing and non-writing projects…
Read More Team Drea Fall Preview
People always ask, “when’s your next race?” and right now, I gleefully tell them that it’s not til mid-September. But it’s not quiet at Team Drea HQ – not by…
Read More ALS Ninja Warrior
Recently, I’ve become re-obsessed with the NBC show, American Ninja Warrior. My channel-flipping-non-brain took over there for awhile…but I’m back now, baby! They might be running the same course, but…
Read More The Best Driver in America
What does a 3-ring binder have to do with a person’s ability to drive? Nothing, I would argue. But that’s the test that the ALS clinic uses to determine whether…
Read More A Loss for Words – Guest post by Kate Lockhart
This is the final blog in our little Tri-State Trek mini-series. Check out Part 1 and Part 2 if you missed ’em. Let me just start by saying I love…
Read More Lessons from the Trek – Part 2
We’re in the middle of my 4 takeaway lessons from the Tri-State Trek. Catch up on Part 1 here. Well, hell. The most emotional part of the Tri-State Trek is…
Read More Lessons from the Trek – Part 1
Two weeks ago, DP and I flew up to Connecticut to participate in the Tri-State Trek, an annual bike ride and fundraiser for the ALS Therapy Development Institute (ALS TDI).…
Read More Need More Birds
May 29th marked three years since I was diagnosed with ALS, not that I understood the doctor at the time… And you know what that means: NEW tattoo! I’d hoped…
Read More Flying on one engine
On Wednesday-Friday of last week, my mom and I went to Gainesville, FL to see Dr. Emily Plowman at the University of Florida. She is a professor/researcher/clinician specializing in swallowing…
Read More Home Sweet, Accessible Home
Thanks everyone for your kind well wishes on our new house! It’s been…educational. First off: my mom is the world’s most diligent, persistent, jaded, and questioning-to-a-fault realtor. This drove…
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